The Phenomenal, Fabulous, Fantastic DS Blogblog

Dan Niblock is tireless when it comes to blogging about the syndrome of D. Not only about his own bundle of magic, little Ozzie, but also about events and info relating to Downs on the wittily titled Down Town.

He’s just released a new one into the wild. I’ve used the short, snappy title as my own for this post [ ๐Ÿ˜‰ Dan]. There’s some fantastic writing on it too, except this time he’s highlighting other people’s experiences. ‘Words of wisdom from a multitude of Down syndrome bloggers’, he calls it. I’m not sure if that means people with Ds, people with people with Ds, or something else altogether, and I’m glad I don’t know. There are already too many restrictions in the minds of too many people, and I’ll be trying not to add to them in 2010.

He very kindly asked me to lend an old post from here, which I was happy to do, and there are already a handful of real pearls from some smart people there. I’d urge you to visit, and to pass it on to anyone who might benefit (that is just about everyone, if you ask me). It deserves a big audience.

Happy new year, everyone.


Special Olympics Ireland on Facebook

Can you help me push their Facebook membership towards 2,000 fans?

facebook_logoNext Thursday I’m meeting a group of people from Special Olympics Ireland. Volunteers. I’ve been asked to talk about social media, and how it can help organisations like them in fundraising and getting the positive messages and experience out. There are 300 million people worldwide on Facebook. I’d like to use it to make as many of them as possible aware of the amazing work Special Olympics do.

I won’t need to tell you lot what a great bunch they are, and not just in Ireland. As part of my presentation to them, I’m really hopeful that I can demonstrate how powerful our little blogging community can be for the cause too. We network, advocate, share resources and provide a great early warning system for each other, as well as having a laugh and keeping up to date with our wonderful friends worldwide.

On Friday last I pushed the same message out on Twitter. In the space of 24 hours my little group of followers on Twitter, none of whom are involved in the Ds scene, had added 60+ fans to the Special Olympics group. The fan base went from 1,660 people to 1,740 and is still climbing. It’s at 1,785 as I write. The internet has made this stuff possible, and I would love to hit 2k before next Thursday, Oct 22nd.

How can you help?

  • Join the Irish Facebook page here.
  • Link to your own area’s Special Olympics FB page too if you’re not in Ireland.
  • Blog about the group yourself. Feel free to cut and paste from this post.

Picture 1

And if you want to follow me on Facebook, (not you, Revenue) here’s my profile. It’ll all be just lovely and we can have tea and scones and tut tut about the young people today.

Summer sports camp in Laois/Kildare

Image by Dru Bloomfield

Found this over on Irish Autism Action.

Summer Sports Camps are running in conjunction with the Laois, Kilkenny, Carlow and Kildare Local Sports Partnerships and Special Olympics Leinster.

It’s for any child with an intellectual disability between 6 and 16 years of age. Siblings welcome. If it sounds like you then check out the details at the Autism Action site.

Oh, and a quick apology for the lack of everything round here. A Jacob update is on the way when I can get him off the stairs and in front of the keyboard. ๐Ÿ™‚

A post to support Irish Autism Action

The absolutely amazing and tireless creation that is Hammie is yet again going without sleep so that Irish autism can benefit. She’s got two incredible kids with autism herself, yet despite the 27 or so hours she devotes to them every day, she also finds time to do stuff like help loads of other special needs groups like Jacob’s. Oh, and she fundraises like Billy-o for Irish Autism Action.

The latest push comes with the assistance of O2 and Samsung. For every Samsung Tocco Sold In O2 stores during the month of June, โ‚ฌ10 will be going to Irish Autism Action Charities in your area.O2-5628+Sam&IAA+Corp

If you ARE in the market in Ireland for a smartphone, please put the Samsung Tocco on the list for consideration. And if you’re not, I’d take it as a personal favour if you could spread the message to anyone you know who might be.

If you want to find out what that support means from the perspective of someone with autism, Hammie’s blog post says it rather nicely. Please support her essential (and usually unsung) work if you can.

Cyberlove. All of the fun. None of the Kleenex.

I have to say thank you tonight to four great people. I’ve not had the pleasure of meeting Nan P, Cathal’s Mammy, Sesame and Hammie, but I know a lot about a little of each of them. In the last week or so they have all separately named Our Jacob as a site that they like, so obviously they’re particularly discerning and highly intelligent individuals.

Initially, being the rejectionist that I am (actually I’m not) I thought ‘Oh, here we go, another piece of shiny bloggerbait.’ (I’m a bit too precious like that sometimes: Stick with the mission, Nick. It’s about Jacob, his difference, his impact, his effect on us, our coping, our adapting, our stress and all the rest of it. That’s the reason why I don’t list any of the other wonderful and nourishing blogs that I read and contribute to on a regular basis. My links are to people or places with special needs relevance or crossover.)

But now I realise something else. The four people who passed this outreach to me are special and, by no small coincidence, they are all very close to people who deal with stuff in ways that the majority of us don’t have to even consider. They share some genes with people who don’t share some other genes with most people. And here we all are, with our special needs on our sometimes turbulent but mostly cheerful ship of specialness, scuttering away across seas of- oh for sweet Jesus’s sake get on with it, windbag!

Kay. I want to say a big thanks to all four of you, for thinking of this journal as something that has relevance for you. I’m glad it does, and yours all certainly do for me. I hope others who read this end up linking and learning. Now on with this chain mail, about which I am absolutely not cynical, Hammie. No, I swear!

Les rรจgles du jeu:

1. The nominated may put the picture on their blogs.
2. Please link to the person who awarded you.
3. Then annoy nominate seven other people and link to them.
4. Leave a message on those people’s blog to make them aware that they’re nominated.

My annoyminees:

South Dublin Dad is Ava Charlotte’s dad and makes me consider important stuff that I hadn’t considered. A good thing.

Wellied on Life ALWAYS has an alternative weather report, and she never fails to stimulate my grey matter.

The Muse. Noah’s dad writes good, and gives me the comfort of strength in numbers. I’m not the only joker in this pack!

Mothering by the seat of my pants. Chris does a lot of wondering aloud. But it’s never idle and it’s usually challenging.

Bock the Robber. I’m giving this to Bock in honour of his long-range opinions and his sublime crankiness. A beautiful award like this will probably add to the latter.

The Voyage. Sharon’s the centurion at the gate, advocating for autism in a beautifully written way. But watch out – she knows kung fu.

Narrow Ridge. Tom, another downsdad, always delights me with his pics and thinks through things before speaking. Clever.

Play the game or some or none of it – all up to you guys. I won’t be offended. I include you all because you’re worth it and you all stay on my Reader, not that I think you’re clever or anything…