Hammie has done a lot of fantastic work on this post at Irish Autism Action, outlining the frankly terrifying work that’s going on behind the scenes in civil service land here in Ireland. In short, under cover of the economic times, Carer’s Allowance for those looking after kids with special needs is under threat. Assessment is changing, toxic misinformation is seeping out and a lot of already hugely pressurised people are scared witless at the prospect of having their meagre support slashed. You’d be up late if you were paranoid. If you aren’t, start now.
At no point were parents or advocates representing parents and carers consulted in the process. This is a payment for people who live with and care for a child with a disability. And they didn’t consult anyone who actually does this full time.
Everybody knows that we all have to face tough times. And most everybody I know is willing to make the sacrifices necessary. But this, all frivolity aside, will put suicidal thoughts in people’s heads. It is quite simply misguided at best, and nightmarishly sinister at worst.
We will have to resist, resist at every turn, and do what it takes to imprint on bureaucracy that even faceless actions by the untutored can have the most severe repercussions.
This is really great reporting from Hammie, and I am extremely grateful to her for it. Read it all here. Most especially if you care for someone with special needs here in Ireland.