I dunno about you, but I’m a little bit excited by the thoughts of Ireland hosting the World Down Syndrome Congress in August. If you look at the website it’s clear that a lot of people have already been doing a huge amount of work to make it a very big deal. For instance, as a sidebar to the main even, which takes place between Aug 20 and 22, the Down Syndrome Medical Interest Group (Sounds like a trendy barber’s, D-Smig. Not sure they’re here for a trim though.) will be meeting on Wednesday the 19th to think big thoughts about getting important medical information out into the world. These are top healthcare professionals from around the world. You have to be a little bit in awe of commitment like that.
And that’s not the tenth of it. Take these guys: the Research Directions Group will be working
to identify and prioritise the research directions that promise to deliver practical benefits for the development and quality of life of people with Down syndrome and their families in the near to medium term (5-10 years) and identify current best practice in development, education and healthcare. It is multidisciplinary and comprehensive, including genetics, development, cognition, education, behaviour and medicine and is open to researchers, practitioners and families.
Come on! This is basically a think tank. The closest I’ve ever come to a think tank is a bloody oil tank. This is big stuff, and it’s all happening in the Royal Hospital in Kilmainham right here in Dublin. There are lots of ways to become involved, as volunteers and more, and wouldn’t it get you right into the heart of the action?
I’ll be coming back to this topic for certain, but I just thought it would be a good idea, if you’re at all interested, to just start to think about starting to think about making plans.
Here’s a contact link. You can join the mailing list and get regular updates. Laters y’all.