It’s only eight months away!

(But first a reminder about Grandparents Day for DS!)

wdsc2009wI dunno about you, but I’m a little bit excited by the thoughts of Ireland hosting the World Down Syndrome Congress in August. If you look at the website it’s clear that a lot of people have already been doing a huge amount of work to make it a very big deal. For instance, as a sidebar to the main even, which takes place between Aug 20 and 22, the Down Syndrome Medical Interest Group (Sounds like a trendy barber’s, D-Smig. Not sure they’re here for a trim though.) will be meeting on Wednesday the 19th to think big thoughts about getting important medical information out into the world. These are top healthcare professionals from around the world. You have to be a little bit in awe of commitment like that.

And that’s not the tenth of it. Take these guys: the Research Directions Group will be working

to identify and prioritise the research directions that promise to deliver practical benefits for the development and quality of life of people with Down syndrome and their families in the near to medium term (5-10 years) and identify current best practice in development, education and healthcare. It is multidisciplinary and comprehensive, including genetics, development, cognition, education, behaviour and medicine and is open to researchers, practitioners and families.

Come on! This is basically a think tank. The closest I’ve ever come to a think tank is a bloody oil tank. This is big stuff, and it’s all happening in the Royal Hospital in Kilmainham right here in Dublin. There are lots of ways to become involved, as volunteers and more, and wouldn’t it get you right into the heart of the action?

I’ll be coming back to this topic for certain, but I just thought it would be a good idea, if you’re at all interested, to just start to think about starting to think about making plans.

Here’s a contact link. You can join the mailing list and get regular updates. Laters y’all.

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6 comments on “It’s only eight months away!

  1. NAN P. says:

    I have it on my To-do List to request annual leave for that time – Must absolutely do it this week… It’s quite exciting alright, and to think that I am priviledged enough to have it almost on my door step, and such a short time after entering the incredible world of DS! What better way to get right into!

    Good on you Nick for publicising this world event.

  2. The Muse says:

    Hello mate, am on the mailing list so keeping a keen eye and ear out for how we can get involved, can’t really let this pass without dabbling in it in some form or another even if it means donning a high-vis and directing cars for parking.

  3. Cal says:

    VERY cool! I wonder if being around a think-tank automatically makes you smarter…some kind of osmosis for brilliance. Nice work on starting the countdown early and getting the word out there, too! Good stuff.

  4. kayla says:

    There’s an award for you at my place! Hope all is going well!

  5. So good to hear of these events that help educate and support.

  6. kayla says:

    That is way awesome! I would be so excited to. It is a huge deal. I wish they had something going on like that here in Illinois. I hope you guys are doing well. Lucian finally went to the bath room. I think I am going to try and squeeze in a few extra ounces of water and juice in a day through his g tube, Maybe it will help. It is good to know that someone else knows what am talking about.

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